14.9.12

Pleb!



Hey Blogland

10-09-2012
 
Well I got the Transplant news magazine thing through the post today and it says that Papworth have only done ONE heart and lung transplant from Jan 2012 – June 2012. I know this is only a 6 month period but I just find this a little disheartening. I know this is an awful way to think that surely they should be doing more and by doing more that would mean more people would have to die blah blah blah, but I just can’t help thinking that there  “supposedly” someone dying like every second or something like that according to statistics. Well they can’t all be dying everywhere else and not the UK can they?

Okay so I just looked it up and on the net it says in the UK on average per day there’s near enough 1800 people dying per day. Now these can’t be all completely useless organs can they? It’s just starting to get on my nerves a bit that’s all. I know there aren’t many of us waiting for both heart and lungs but even in that small amount of people the likelihood of even half of us getting the organs we need in time is slim to none. It’s not fun waiting because I can tell you now in the 5 months I’ve been waiting for my transplant I have gotten worse. I didn’t think it was possible but I have… and it sucks. The 11 years I’ve had PH I’ve never gone downhill rapidly but the past year to 15 months has been literally from okay to absolute shit, I am tired all of the time and I don’t know why because I sleep A LOT and it’s even starting to make me question whether I’ll be able to do my Uni work to the standard I want it to be because I seem to be needing this excessive amount of sleep Grrrr. It’s just getting on my nerves that’s all blogland. I’m sure it’ll happen eventually I just wish I didn’t have such a common blood type then maybe I’d get it sooner being common is good if you needed to pull someone off of the street for a blood transfusion (I know unlikely LOL) but in this case not so great. 

Where are all you O people?

New life where are you?

13-09-2012

Well I have been suffering from an unknown bug for the past few days. It’s hard to put into words but it just felt like I have been drained of all energy (probably the reason for my rant on Monday LOL) not that I normally have that much to begin with but for 2 days I was literally stuck in bed on my oxygen and sleeping which I know for some of my family they will be like “that’s what you do anyway”. And yes I do normally sleep a lot or not at all, but it felt weird because normally it’s my choice to stay in bed the past few days I couldn’t have got out of bed if I had wanted to. My parents were bringing me my meals and food and water and all that palaver. I think it’s just something I caught off my mum because she was ill Saturday and Sunday and pretty much spent the weekend on the sofa. But no need to worry I am feeling much better now although I generally do feel much better in the night time. So we’ll see in the morning if it continues I will know I’m definitely on the mend.

Although the time I wasn’t sleeping during this week I have been reading “The Hunger Games” trilogy. I get a tad obsessed with things sometimes. I go from one extreme to another being that I will read something about 5 times in a row and then not read it again for 6months. I think it’s something I get off of my dad. I get attached to things. My mum she can read a book and never read it again, watch a movie and never see it again, whereas me and my sister Megan we are a bit over kill when it comes to TV programme’s, movies, books we love to gorge ourselves with them until we’re sick of them and then we’ll leave them alone for a bit and then come back to them. For instance Vampire Diaries is coming back in 4weeks and Right now I’m planning to watch all 3 seasons in the lead up to its return. Now I have a fair bit of time on my hands so I can probably do this in a week but I’m looking forward to it.  

It is my little Nephews second birthday tomorrow and I will try and get some pictures for you. I’ve got him a lot of clothes because my sister Candice requested them as he’s started growing out of his old ones and also he has a million toys that will likely last him till Christmas, so I can spoil him with toys then. I can’t believe it’s only been 2 years since he entered our world, it’s strange because it’s hard to remember what we did without him but then I remember it like it was yesterday the day he was born. Strange I’m sure it’ll be the same when new niece or nephew arrives. I have a feeling it’ll be a girl but I think that’s just me hoping because I want to buy little girl clothes. Not that it’ll matter whether it is a boy or a girl I just really want to buy flowery dresses.

And in other news I had my 2nd module stuff delivered and I’m pleased to say that it HAS BOOKS, yeyyy! If you're reading this and are like “what are you talking about? Why wouldn’t it have books?” Well some courses like my Politic module is solely based on DVD’s and CD ROMs that the Open University has made and designed specifically for your course. They give you a few readings but other than that this is what you rely on. If you read my previous blog you will know that I like a good book , I feel like I’m learning when I have a book and would preferably have one when learning anything and that is my history module so Yeyyy! I am uber chuffed about that. 

14-09-2012

Well it was the little nephews birthday today and I know I said I would put up a few photos to show but I have left  my camera at my sisters so she can take a few with her friends and their kids so I will add a few tomorrow when I add the video to LEGOLAND. But I can provide you with a picture of me and the Birthday boy that if you have me on Facebook and Twitter then you will already have seen it but it’s better than nothing :-]. 

 After having a busy day opening presents and playing pass the parcel with kids I totally forgot to ring Papworth to let them know that I would be more than an hour away from home tomorrow. Now after work hours you’re told to ring the on-call transplant co-ordinator. For some reason and do not ask me what that reason is I thought on-call meant they would be at the hospital just working the night shift, trying to fit sleep in where they can. But nooooo the total pleb that I am, they are actually at home. Now I was going to either ring tonight or like 5 o’clock tomorrow morning, I’m sooooo pleased that I chose to ring now than then because I would very likely have woken him up. I still feel sooo bad but at least I know and I’m going to have to try and be extra prepared the next time I go somewhere.

See you tomorrow Blogland   

Stacie xoxo

2 comments:

  1. Hey Stacie! Keep your chin up :) Imagine if you were a rare blood type, the chances of organs actually coming available would be even smaller! Your time will come! x

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  2. Oh Stacie, I know exactly how you feel. It does seem crazy that there is all these organs available every day with most going to waste. Which is why I think the opt out scheme would be so good for people like us. However you know deep down that it isn't the amount of donors it is finding the right donor for you. I hope you get your chance, I really do. So keep you chin up and I'll do my best to support you. Take care.

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Thank-you for commenting <3