Well I said I would write a Blog every Sunday and I really will try and stick to it obviously this week it was a bit wonky but obviously Thursday was an important day and deserved a blog post all by itself. In preparation for this Sundays Blog I have pretty much been writing this for a few days so I can give you an accurate blog about my week I tend to forget things LOL…
So here in the UK it is ridiculously hot (Now being Thursday LOL). Now most people would generally appreciate this change as normally we Brits pretty much get dreary and wet but this week we are getting temperatures hitting the 30 degrees Celsius which is soooo hot especially if you’re used to 10 degrees Celsius. Now I can appreciate the nice weather as much as the next girl but there are some of us Phers who really don’t do well in the hot weather, me being one of them. Some actually thrive in this weather, how I wish I was one of them. But for people like me, I find this weather very tiring and fairly debilitating. It pretty much restricts the little I can do already right down to pretty much nothing, and sleeping just does not happen Full Stop. Example it’s currently 2am as I write this. I think the reason is my heart rate feels like it doubles in this heat and without anything to occupy my thoughts whilst trying to get to sleep all my brain concentrates on is my heartbeat and therefore the less I sleep, the more tired I get then my chest seems to begin to hurt and this is when I have to whack out the old oxygen as that’s the only way I can guarantee any sleep. So far this week I’ve persevered and not used my oxygen but that’s because I’ve pretty much had nothing to do this week so I’ve been able to but if I can’t tomorrow (Thursday night as I write this) then I will have to resort to it as I have work on Saturday.
Oh yeah funny tidbit that I haven’t mentioned… I got my most recent assessment letter through from Papworth on Monday… I think… and I was reading through it and they had written my weight down to be 4 kilos heavier than I am, for those that don’t get kilos that’s 8.8pounds heavier than I am. Now normally this wouldn’t be an issue but being on the list you have to maintain a healthy BMI. Now mine is 26 at the moment so I do have a few more pounds to lose but so far I have lost over a stone to make sure I’m as healthy as I can be when I get my transplant. But I was on that phone in about 2 seconds flat getting them to change that number, I feel really bad because I may have come across quite blunt and frantic to the poor woman on the end of the phone but it is important. I sort of panicked because how big you are as well affects the organs you can receive because apparently as a rule donors tend to be small. I’m not massive or anything I’m fairly average but it is an important factor being on the list… you are always constantly aware of how much you weigh be it losing weight or putting it on. (I promise to tell you how much I weigh once I reach my target but for right now that’s all you get :P)
I watched the Olympic opening ceremony and OMG I was really impressed, I really thought with all the cock-ups that have happened with the whole G4S security stuff that they may not pull it off, but in my opinion they totally did. I thought it was really great how they depicted our history and how they displayed the industrial revolution, they could have maybe explained the silence for the world wars a bit better. I know being British we know what poppies signify but to some-one in another country they probably didn’t have a clue. I thought it was really intense and I bet all the people in the stadium probably had a better experience because of all the drums and getting the full effect of it. I wasn’t a big fan of the music bit with random teenagers texting each other, I don’t think I really ‘got it’, if that makes sense? I just thought it lasted for far too long. Rowan Atkinson was hilarious, I’ve never been the biggest Mr Bean fan but Mr Bean is quintessentially British and therefore deserved to be there in my eyes. Thought it was great that the queen did her bit and did well to play a part in the ceremony although I did cringe but laugh at the same time LOL.
The thing I was most impressed with and was pretty much in awe at was the lighting of the torch. I was soooooo impressed I was not expecting it and in all the Olympics I’ve ever watched it was the most unique lighting I’ve ever seen. I’m pleased that it wasn’t David Beckham who lit it because in my eyes he isn’t an Olympian and therefore why should he light it? I know he’s one of the best footballers in the world and an ambassador for the UK but in my mind that doesn’t not qualify him to light the torch. So I really loved that it was seven potential Olympians and the old Olympians were literally passing on the torch to the next generation. So loved it! Although there are other countries who are complaining that it was too British, well what do you expect?! We are British and the Olympics are being held here so shut up and accept the fact that we love our Britishness!
I’m currently struggling with a migraine (Saturday) and wish it would go away I can usually deal with a normal headache but a migraine unfortunately makes me bed bound, I was meant to be going to the cinema with my sister and a few friends but right now that is just sooo not happening .
Got to see my friend Rosie yesterday and I got to meet her boyfriend Sam. It was nice to catch up with her because literally all my friends I don’t see for most of the year and then July comes and everyone comes home and then I have to fit them all in, it’s why I love July to October because I get to see everyone again. Almost all my friends have now graduated but they are now either going on to do masters like Rosie or are trying to become an adult and get a job in the Real world. We are pretty much all becoming adults, a little bit scary! LOL.
This week I keep hearing about different Cystic Fibrosis patients getting new lungs which is really
great and I’m so happy for them because I know they need and deserve them, but is it really bad that I’m really jealous of them? I’m starting to sort of be like when is it my turn? Because technically I should be pretty easy to match. I have no antibodies. This is good because it means I can accept 100% of donors within my blood group. I’m blood group O negative which is one of the most common blood groups there is. Unfortunately as O is a universal blood group others can accept O but O’s can ONLY accept O. Is it really selfish of me to think O’s should get priority when an O organ becomes available? I’m probably a little prejudice when it comes to that though so my opinion is probably invalid. Then there’s the fact that I am young at only 21 which although really bad in one way is good in another because it means the likelihood of me surviving is a lot greater. Also in previous experience I have always bounced back really quickly when it comes to operations and the doctors know this. So I do have all these things going for me but unfortunately having a common blood type is bad because there are less organs available for the demand so in a way I kind of wish I had a slightly less common blood group then I probably wouldn’t be waiting for so long. Then there’s the fact that I need a heart beating donor because the heart CANNOT have stopped beating otherwise the organs will be rejected and the only way they can generally get heart and lungs together is when someone has had a random brain haemorrhage and their body is still live but their brain isn’t. So they are dead just their body hasn’t caught up if that makes sense.
It is really difficult to think that I’m waiting for someone to die so I can live but I think I’ve got it a bit easier than some because I’ve known about this since I was 11 so I’ve 10/11 years to get my head around it. A lot of people just get it sprung on them and I’m not sure how I would cope if one day I was perfectly fine and well and then the next I was deteriorating and dying. So at least mine has been pretty gradual. Maybe not as gradual as say dying at 80 but more gradual than some people I know J.
I have just got back (Sunday) from having a chilled out day at my Auntie Brie’s place which was really nice. As we were going over the Severn Bridge it started to rain and I was like Oh no, but it held off all day and we managed to have a really nice day out in the garden. Jaydon seemed to enjoy himself. Brie had got him a little golf set that he attempted to use as a golf set for the first few tries but then he kicked the balls round like mini footballs and started using the clubs as swords and swinging them around and generally hitting people with them LOL. We found out my cousin Mathew is expecting his first Baby which is awesome because his and Candy’s babies are pretty close together so they’ll grow up together which I really love the idea of, very exciting stuff.
I am going to get into some Olympics, just finished watching volleyball where the girls got through. Now watching the swimming where we cam eighth and now waiting to see Rebecca Adlington swim and try and catch a bit of the Gymnastics :-D.