Well Great news on all fronts.
I woke up at 4am, not ideal, but I feel SO much better I woke up feeling just a lot better my chest isn’t hurting anymore which is awesome, I’ve still got a constant headache but that can be dealt with easily with just a bit of Calpol. I’m going to start to wean myself off of the oxygen but if I do start to feel worse for doing so I will go straight back on it. I’ll still be using it at night because that does seem to be making a difference but just so pleased to be feeling semi-normal again so woop.
I will still call Hammersmith today at some point and see what they have to say but I have a feeling they’ll just tell me to wait till my appointment in January if I’m feeling better unless I get worse dramatically.
But in other news my Cousin had his baby! She was 10 weeks early which was a shock to everyone but she seems to be doing okay, she weighed 3lb 7oz and is still in hospital but I think she’ll be fine. They called her Aurora Lily which is just the loveliest name. My cousin didn’t actually know Aurora was from sleeping beauty but I think it’s just the cutest name, different without being weird, unique and I don’t think she’ll find anyone with the same name when she goes to school. So pleased for him and I can’t wait to meet her :).
Also getting in the Christmas spirit and I bought Michael Bubles’ Christmas album which I will be listening to whilst I am doing my essays. Cannot believe how fast this year has gone I feel like I barely got a chance to appreciate being 21 lol.
18 DAYS TILL BIRTHDAY
29 DAYS TILL CHRISTMAS
I think I am officially better, maybe it was just a underlying bug that my body was fighting but wasn’t presenting itself in usual forms Hmmmm… I don’t know but I am just happy whatever it was it’s gone. I did ring up Hammersmith and they told me unless I was feeling horrible still they would just leave it until my appointment in January when I will be having an exercise test, lung function, echo etc. etc. The usual, but if I start to feel awful again that I should ring them immediately.
I would love to just quickly say a massive HI to all my new followers this week; I never expected to get many followers because it really is just an outlet for me, and also a way to raise awareness for my condition and organ donation. I also have quite a few PH friends who read this and it’s good for people who are newly diagnosed to read to know what they are going through is normal and they aren’t alone. But it’s really lovely to know that I’m reaching people.
I’ve made some enquiries with the organ donation people because I really do want to do some either campaigning or simply getting the word out there, I did some for PH back when I was 16 and that felt so good and maybe I can kill two birds with one stone by raising awareness for PH and organ donation, I don’t think it’s something that will happen before Christmas but something that will probably happen after Christmas but definitely is something I want to do :)
There is likely going to be a massive haul post soon because I kind of went on a make-up binge last night and bought a few MAC bits and a few Benefit bits and tonne of Barry M nail varnishes so look out for that, if I reach a 100 followers I may even do a give away just to thank you guys :-).
17 DAYS TILL BIRTHDAY
28 DAYS TILL CHRISTMAS
Well today has been spent basically me trying to get my politics essay done which can only be described in one word, Boring! That and sleep. I really should try to not do essays on my bed because I sort off start of really well and then I’ll get maybe 30 minutes into it and then my eyes start to shut and then I’m like “Oooo, I’ll just take a 10 minute nap” those ten minutes turns into about 4 hours LOL and then I wake up too groggy to do anything and just can’t be bothered LOL.
Overall my health seems to be on the up still which I’m more than happy with, still have the headaches but I’m used to them so all I can say is I am thoroughly pleased.
There have been two transplants recently on the Facebook groups I am a part of, which I’m so chuffed to report. One was a little boy who got the heart he has been waiting for and then a lad of similar age to me who got the lungs he had been waiting for. I’m so chuffed to hear of people getting their transplants because before this there was quite a lot of deaths happening within the transplant community because of various different reasons so when I hear people who are actually getting their transplants it gives me hope especially when they have blood group O because those of us with that blood type are in for a LONG wait.
So everything is on the up!
There will definitely be a haul blog soon because my deliveries are starting to arrive I just got my 7 Barry M nail varnishes so woop woop!
16 DAYS TILL BIRTHDAY
27 DAYS TILL CHRISTMAS
Thanks for reading and see you again soon blogland