So I'M HOME!
I was actually home yesterday and I was going to write this blogpost yesterday but I was SO tired. You kind of forget how much you sleep whilst you are in hospital because there's really nothing else to do, and yesterday I didn't sleep at all during the day because I was just waiting to leave or most of the day and by the time I got home all I wanted to do was go to sleep.
So a little update really after my little meltdown the other day things actually got better, I finally got people to talk to, two lovely women were moved into the same bay as me and although they were older than me I got to have a good old natter to them and you have no idea what that can do to just improve my mood and make the day go by a little faster. I also seemed to get better nurses after that point as well although there was one particular nurse who I'm debating making a complaint about because she was verging on negligent. She marked down that she had given me an injection, which I am 100% certain she did not! But because it had been marked down that she had given it to me the new nurse couldn't give it to me just in case, which I understand but it was annoying especially when I know I didn't get given it. Anyway enough of that rant.
After my last blogpost we did find out that the infection guys were extremely adamant that I have at least 2 more weeks of intravenous antibiotics. To do this they ideally wanted me to stay in hospital for another 2 weeks, I however being the stubborn human being I am refused and told them if I wasn't out of there by Wednesday I was going to discharge myself. This may seem extreme to some but there was no way I could have stayed in hospital for another 2 weeks when I feel perfectly find, if I had been feeling dodgy or off or a little unwell then sure I would have stayed but being in hospital for a long time, and especially when I feel fine, turns me into someone horrible, I become irritable and I become downright miserable and I'm not surprised people who spend extended amounts of time in hospital suffer from depression. So the fact I had told my doctors they had till Wednesday kind of kicked their butts in gear and my doctors did everything they could to be able to find a way to get me home rather than stay in hospital for another 2 weeks. Annnnd because my doctors are awesome they did!
They tried to do it where a district nurse would come out to my house and do it but because of the extremely high dose of antibiotic and because it's a IV apparently they didn't feel comfortable enough to do it which was disappointing but they managed to convince my local hospital to do it. So for the next 2 weeks I have to go up to the hospital and have the IV. I know there are probably some people reading this thinking 'surely it would have been easier to stay in hospital to have it done?' Yes it is true that it probably would have been easier but I'm a great believer that people cannot get completely better whilst in hospital and I was at the point where I was as better as I was going to get. While I was there I wasn't moving nearly as much and my general condition had deteriorated and I now have to rebuild strength in my legs and recondition my body back to it's former strength which just couldn't happen whilst I was in hospital. So traipsing to and from hospital everyday should help to do that. Also there is a lot to be said for being around friends and family! Being in London I wouldn't have been able to see anyone maybe once a week if I was lucky and that isn't good for anyone it was really getting me down not seeing my family and my precious babies (my cats lol).
Now I'm actually home it doesn't feel like I've been away for 3 weeks but I cannot even tell you how amazing my bed felt last night and I got a full uninterrupted nights sleep, the first in 3 weeks!
Also the day before I left I got to meet a lovely lady who also had PH and it was really interesting to talk to her I wish she had been there from the beginning I probably wouldn't have been so bored or lonely but even in the day I got to talk to her I'm pleased I met her.
Also something I hadn't met in any of my previous blogs is that a good friend and fellow Pher who got her transplant back in May, Anne, really sadly passed away while I was in hospital. I actually got to visit her the day before I was admitted to hospital and we knew then how bad had got as her lungs had decided they did not want to work and unfortunately the doctors could do no more for her. Anne was a fighter till the end and I will miss speaking to her very much. I'm extremely mad at my body because with these hospital visits it means I cannot go to her funeral which I really wanted to attend.
I'm going to leave you with a few photos that my sister saw fit to take in my incapacitated state in hospital so firstly excuse the fact that they were taken on my phone and also that I look horrific lol
...and I'm now off to hospital also :)
|Being fed grapes by the nephew because thats obviously what you feed ill people!|
|Me waiting to go to the ambulance|
|Me in the Ambulance about to go to Hammersmith|
Chat soon Guys