Hospital free...

Heya Blogland,

So I went to Bristol on Friday just to have my stitches removed from my line as they had been in 3 weeks and needed removing and I thought that it was going to be my last hospital appointment for a while until my doctor noticed that my line didn't have a protective cuff on it, which simply just protects my line and stops it from twisting. Unfortunately most hospitals don't stock Groshong lines and Bristol only had baby ones so I had to go all the way to London yesterday just to have this cuff put on my line. It was annoying to have to spend 5+hours in a car for a 5 min appointment but I suppose it'll be worth it in the long run because it means the actual line won't get damaged etc.

While I was at Bristol however I was asked to take part in a study on patients with PH. It's a anxiety study, because they believe that patients with PH suffer from anxiety and/or stress more than the average person. I have been told that I suffer from anxiety and I do get anxious in certain situations but I think over the years I've managed to avoid getting to stressed and I try to let things just go over my head. So at least I've got one sorted :). But I told them I would take part in it I'm not sure exactly what it entails but the lady said she'll get in contact with me soon and they'll go through it with me. I am however hospital free (minus inr appointments because they don't really count as they take about 5 minutes) until October unless my transplant call would like to happen in the mean time, so massive yey for me :D. 

Yesterday after London Megan, my niece and I went to see "Percy Jackson and the Sea of monsters," it was what I describe as a good 'Sunday afternoon movie' I hope you know what I mean by that. I wouldn't say it was as good as the first movie but still worth a watch. 

Something I'm slightly annoyed by is when did it become okay to stare at people? And when I say stare I mean openly ogle! Yesterday I got back from London quite late so I didn't have enough time to pre-make my Flolan but being prepared I always take some with me wherever I go and a spare pump. So after Megan, my niece and I went to the cinema we went to pizza hut and I had to make up my Flolan there. Now I told our waitress that I would be doing my medication and that there would be needles and she was fine with it, so I start making it up and people were openly staring/ogling. Beyond rude and makes me feel ridiculously uncomfortable. I just wondered when it became okay to just openly stare/ogle people? 

Jordan (my niece) and Meggy
Also Voting is stil happening for the Cosmo Blog Awards so if you want to you can still vote the link is in my side bar or just below and I will talk to you guys soon :) 


  1. I don't think that they are trying to be rude, but humans are every bit as curious as cats, even though most people deny it.

  2. I love this blog! thank for writting it :)


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