What have you done since April 2012? I bet you have a list as long as your arm of trips, occasions, achievements and accomplishments that you did and got in those 1,000 days.
What I have I done since April 2012?
For 1,000 days I have been waiting, most of it has been very patiently but I must admit since my last false alarm on September 25th 2014 my patience has started to wear extremely thin. When you go to hospital and the doctors as much as someone in my position does, patience is a something that becomes a part of you, you cannot get through your life without some form of patience or you would always be shouting at staff for their ineptitude, for hospitals lack of communication with one another and would be constantly frustrated with waiting in waiting rooms. Patience is a skill that is of very high value in my kind of life. The problem though? It's 1,000 days.
There's different kinds of patience though you know? You may think you're patient because you managed to wait 18 months for some holiday that you saved to go on but the thing is you knew that was going to happen, you waited patiently because at the end of it you knew without a doubt you would get to go on that holiday. Now imagine having to wait for an unknown length of time for something that may not happen. That's the kind of patience I have had to acquire the past 1,000 days.
This is honestly not something I would wish on anybody. I'm starting to lose my rag with it all and the problem is I can't just throw in the towel so what do I do? I stay in bed listening to audiobooks, watching movies just trying to ignore everything. I'll listen to and watch peoples pretend, perfect, happy ending lives and ignore my life for a while. Seems like the best plan to me lol.
I've not been feeling that well for the past week or so and in the past 9 days I've only spent one of those not in pyjamas so that's probably why I'm a bit grumpy about it all, although that being said if I was feeling okay I still would be grumpy about it I think.
I hope it's not much longer 1,000 days certainly seems like I have done enough waiting. Whatever unknown, mysterious thing I'm being punished for I've done my time.
As always, thank-you for reading guys and chat soon
I'm in my 20's and after waiting 3 years,
I underwent a heart and double lung transplant because I suffered from a illness called Pulmonary Hypertension.
This blog is where I documented that journey and will continue to document all the amazing highs and the lows post-transplant. I hope to continue to raise awareness for both PH and organ donation and I would love for you to continue to share this journey with me.