29.6.15

Coming Home...

I'm sorry guys these blogs were meant to be really close together but I just don't seem to have enough hours in the day at the moment which is a good thing it just doesn't leave a massive amount of time for blog writing.

The entire 20 days that I was in the hospital I cried once and that was when I was being put under before having my transplant. I had expected to be crying here there and everywhere due to all the new medications and all the emotions that having a transplant obviously throws at you but for some reason not me. I cried that once and that was through sheer fear and anxiety. The entire time I was there I was just happy and I had my off days when I wasn't feeling totally right but I was still happy and I definitely think that helped me. That is until the day I was due to go home. 

The day I came home I was told that transport would be there to pick me and my mum up at 11am and that is when I would be leaving. So I had been up since 4am and I was ready to leave and go I was bouncing around like some sort of rabbit on drugs. 11am came and went, then noon came and went, 1pm came and went and it got to 2pm and at this point I was beyond fed up and just about ready to strangle some-one. If I had been told it'll be any time during the day I would have been totally fine I would have been able to relax, chill out a bit but because in my mind I should have been on my way home at 11am I was a irritable cow and the longer time went on the more my mind just kept thinking "They're going to keep you here, you're never going to get home, you aren't going to see Jaydon and Spencer before they go on holiday" I was just getting really annoyed and angry and when I'm angry I cry. 

Then to top off a already rubbish day they moved a woman into the bed next to me who is "one of those people" and by that I mean one of those people who quite clearly revels in being ill. I hate those people. She was also one of those people who likes to tell you every minute detail of their story and how much iller and how much more horrific their "journey" has been than yours. I hate those people. Firstly everyones stories are different, secondly I'm not going to compete with you and try and say I'm iller or was iller. I'm not sorry that my recovery has been really smooth and this woman just seemed to make me want to feel guilty about it. She then decided to just go on and on about all of Papworth's failings in her eyes. By this point I had just had enough and so I closed the curtain (which she still preceded to talk to me through) laid down and cried for about half an hour. Of all the things and all the days for me to cry on this was not the day I thought it would be.

At 3:30 the transport eventually arrived and I got to escape I cannot tell you how pleased and elated I was to finally be leaving! I literally jumped from my bed and ran out of there after saying goodbye to everyone. I could have been sat on a plank of nails on the way home and it wouldn't have mattered because I was on my way home! 

It took about 2 and half hours which isn't that bad in the grand scheme of things and when I arrived my little nephews had put a little welcome home banner and heart balloons all around the front of the house and I had two very excited little boys waiting to see me. Jaydon had been asking since I went into to hospital whether he could go see Stacie and BB yet and the answer was always no and I couldn't really FaceTime or Skype or any of that because the wifi and signal at Papworth is just so horrific so we were just sending videos and pictures to each other a lot so I was beyond excited to see them. Jaydon just rambled away at me like no time had passed at all and Spencer was his usual self. Skyler had grown so much how does a baby grow that much in the space of 20 days I felt like I'd missed out on so much. 

It definitely felt weird being home because you have left the security of the hospital and being so far away from Papworth it's not like if there was a emergency I could just drive up the road to them. Great Western is a great hospital don't get me wrong but they could barely deal with me as a PH patient I'm not sure how they're going to deal with me as a transplant patient. Hopefully that's some way off in the distance though lol.


As always, thank-you for reading guys and chat soon
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2 comments:

  1. I'm over the moon that your transplant journey has been so smooth! you deserve it, told you it'd come didn't i? ;) xx

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  2. Hiya babe, im so sorry about ur story im so happy for u that ur back home
    i wish u all the best :) <3 cute cat u got and a lovely family x

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