2.10.17

Stacie on the Road:- The wheelchair test...


Hello my beautiful people! Do we remember back in June/July how I was a stressed out mess? Yeah? And we all remember that was because we were fundraising for me to be able to get a multi terrain wheelchair? Then ultimately all that stress and hard work put in by everyone was totally worth it because we totally went and did it and raised enough money not only to get me my chair but for us to get two other chairs and raise a little money for "Special Olympics Norfolk" all at the same time. I can quite honestly say it was a very stressful experience and one I would only redo if I felt as passionate about the cause as I did this time but it was a experience and one I'm glad I got to experience. Well we finally got my chair!!! All made up to my specifications and everything in the green colour I wanted and me and Mark have a few personalisations we want to add to it but they will happen probably when we get the other two chairs, but we have it and it's beautiful! 


SO we really wanted to get out and test her. We went for fairly easy terrain to begin with so we went to a place called Whitwell at an old railway station. The walk is a perfect Sunday afternoon stroll kind of a walk, if you can walk that is, and little bit bumpy/muddy here and there so nothing too difficult but certainly still a walk that my normal wheelchair would find very, very difficult to navigate and would ultimately get stuck several times if not every few minutes. The chair did fantastic! I know very little about suspension or tyres or any of that kind of stuff but whatever makes the wheelchair do what it does I applaud the mechanics of it. It felt like a stroll, very little jiggling up and down at all I didn't feel jostled or manhandled in the way you can do in a wheelchair sometimes. In a normal wheelchair on normal terrain I can feel more jostled and with jostling comes chest pains and what feels like you've just done a workout. This means I get more energy to have for eating, talking, just generally which is so amazing!


Test two is one I have been dying to do for about a year, Holkham Beach, as I explained to people Holkham beach is one of the first places me and Mark went together as a "couple" and we always sort of meant to go back in that first year whilst I was well but we just had other things that I hadn't seen or done yet that took priority for us and then when we finally took the time to get back out there I was ill and wheelchair bound and Holkham really isn't the most accessible beach or at least it could be with a few adjustments but for right now you just definitely need the right set of wheels to get on it.  


We weren't too sure how the chair would cope because the tyres although much much better than an average normal wheelchairs they are still small with a small surface area compared with actual beach wheelchairs that have blow up wheels and specialised functions on them. She did it though; she doesn't do too well with the really soft sand and does require a bit more of a push but she can still handle it really nicely and allows you to get on a beach. Once you hit harder sand it's pedal to the metal, all a go go. It was so lovely to be back on that beach though it was kind of a full circle feeling for me a bit like "screw you Chronic Rejection just because I'm dying doesn't mean I can't still do the things I was planning to do when I was well.' Clearly it is all a billion times more difficult and takes so much planning now, we can't just jump in a car and off we go but my amazing human continues to go way above and beyond with everything I don't know how he keeps his cool with it all sometimes. 


So results so far? I am the most impressed person ever! I really, really am and I can't wait for other people to get to use them as well when we get them. Ultimately a wheelchair isn't going to cure someone of their terminal, chronic, life limiting illness but if something like this can just make things a little bit easier for someone I think it's well worth it. I can't even tell you how exhausting wheeling over cobbles can be... honestly it is so tiring for someone in my position, yes I may not be walking but the jostling that occurs in a normal wheelchair is like a workout for people like me which as you can imagine results in fatigue and usually a lot of pain which can take the joy out of it for you and ultimately tends to result in a day being cut short. So switch the chair and there you go, you're removing that jostling factor which in turn removes all those side affects and just getting to enjoy things more. It really is a wonderful piece of kit? machinery?  

WHEELCHAIR SUCCESS!!! So Watch this space for my "Stacie on the Road" adventures, there's some good'uns occurring!

As always, thank-you for reading and chat soon